Ups and Downs,
The past week or so has been extremely testing on every emotion possible. The children are struggling, I am exhausted and our mini break last week was great but also overwhelming for my trio, (another blog about that)
Yesterday I collected our new car from our local dealer. I’m feeling very lucky, due to my decline in health my benefit level has changed and I was awarded Motability. It makes driving a whole lot easier on my pelvic and knee joints.
Today myself and my mum, went to our local hospital as I needed to have another Echocardiogram (an ultrasound on my heart). To their and our surprise there was no fluid around my heart what so ever. I felt such a relief, I had previously had thoughts about the cavity of my heart filling up again and then having to go to another specialist hospital in which I was told I made need heart surgery to correct this if the fluid had reoccurred. A massive sigh of relief from us both. I was then discharged and no further Echocardiogram needed unless I feel unwell again.
So, after leaving the cardiology department we then ventured to the Haematology and Oncology unit to see my oncologist for my results of yesterdays blood results (to check if I’m well enough for my next bone strengthening injections) which I am well enough. I also needed to get the results from the fluid that was tested at the laboratory from when the fluid from my heart was drained.
Well, the lady at the desk told us the appointment had been cancelled and changed to tomorrow (16.03.16), I calmly explained that my mother had driven from wales for this appointment and please could we be seen today…. eventually we were seen by my Oncologists registrar. Dr P. he asked how I am and how I have been (medically) I’d explained over the past 5 days or so, I have this strange wheezing sound, after examination, he and my oncologist agreed that I have a pocket of air (not in my lungs, rather strange) we were then told my bloods were fine and my markers had dropped again!!!! I wasn’t told what they are, it feels irrelevant really.
The test results had come back and it had shown under the microscope cancer cells were present in the cavity surrounding my heart! Cancer cells are travelling around my blood stream. which means one thing.
The good thing is, I can now stop taking the drug Anastrozol, which in one of its side effects gives bone and joint pain. which I get a lot in my pelvis, hands, feet and knees (elbows are ok, no pain there) now that I don’t need to take that drug I should hopefully not need to take so much morphine. That in itself is wonderful, its very painful typing this blog.
The new Chemotherapy drug, I will take orally in tablet form, twice a day after food for 21 days, then have a week off, then start again. It will have the normal chemo possible side effects: sickness, diarrhoea, mouth ulcers, loss of appetite, fatigue, red hands and feet, nail lifting, possible hair loss. there are that many I have forgotten. so, I signed the consent form for the chemotherapy. I am so thankful I can take this in tablet form and not have to have the drug intravenously. I am so so so so grateful, it can be this way. it means less impact on the children, less visits to hospital.
As cancer is spreading, lets face it, I have it in my: Lungs, broncals, pericardial (heart cavity), 2 ribs, clavicle, pelvis and lymph nodes in my chest, also previously had cancer in my right breast and 5/19 lymph nodes were cancerous. I am lucky its not in my liver, kidneys, pancreas or brain
I asked the tough question——————————- PROGNOSIS———————————–
if I respond to the chemo and I can tolerate it I could have a few years, if this chemo isn’t working there is another one I can go on. If it doesn’t work, I could have less than a year….. I’m thinking… a few years….
So after feeling ‘happy’ about that, there were a few ‘base-line’ tests needed before chemotherapy commences…..
Another E.C.G, another chest X-Ray (which I did both today) and I need to have a ‘base-line’ CT scan (which I’m awaiting a date for that).
We came away from that consultation feeling relieved and proactive that hopefully the next treatment will actually work and keep this evil disease ‘at bay’ as the previous treatment for my organs are not working.
I thank you all for your love and continued support, it truly is helping.
the practical support is very much appreciated, with a massive thanks from us all 🙂